Meet Rare Connect.
Find the community you've been looking for.
No algorithm can replace someone who understands. Rare Connect is our space for genuine human connection. We use smart matching to find people who are walking a similar path.
We connect you based on:
The Diagnosis: Same condition, shared stages.
The Struggle: Shared symptoms (e.g., Fatigue, Pain).
The Region: Relevant local resources & insurance.
Someone Out There Sees You
in the Dark
There are others out there who know exactly how heavy this feels. We help you find them, safely.
Your Lantern is off. You are invisible.
You're Managing More Than Just Symptoms.
Living with a rare disease means managing more than symptoms. There are insurance calls to make, lab reports to track, and endless searches for answers. It adds up quickly.
That's 15+ hours every week you can't get back.
We Help You Handle the Complexity.
Managing rare disease means juggling trials, treatments, research, insurance, and paperwork. Our tools handle that for you.
Specialized Care, Under One Roof.
General advice doesn't work for rare conditions. That's why we built a team of specialists to cover every angle of your life.
The Trial Scout
I watch the horizon for you
I search clinical trial registries continuously. When a new study matches your profile, you'll know right away.
The Treatment Matcher
I find the science that fits your biology.
I compare your diagnosis with treatment databases to identify the most relevant options for you.
The Researcher
I make sense of what's happening today.
I follow the latest research and translate it into clear, actionable information for your journey.
The Funding Guide
I fight for every dollar you're owed
I work to maximize your coverage, find grant opportunities, and connect you with financial support.
The Document Organizer
I turn piles of paper into order.
I organize your medical records, test results, and important documents so everything is accessible when you need it.
The Orientation Lead
I turn the shock of the news into a plan.
I turn paralysis into a 4-week action plan. I locate immediate financial grants and draft urgent letters to prevent denials.
The Village Coordinator
I coordinate the help so you don't have to.
I auto-schedule meals and rides. I email your friends, fill the calendar, and handle the logistics of coordination.
Who Controls Your Data? You Do.
Trust isn't given, it's earned. Here's how we plan to earn yours.
The 3 Non-Negotiables:
Your data belongs to you.
Your data is never for sale. Any research partnerships are fully transparent, and you control whether to participate.
Science over hype.
We prioritize proven, research-backed information over viral trends. Your safety and well-being always come first.
Led by patients, for patients.
We involve patients in every major decision through our Advisory Board. This community shapes how March evolves.
We Know You Have Questions...
It's okay to have questions. Here's the honest truth about what we can (and cannot) do.
Welcome Home!
The community that understands is here, along with every tool you need to move forward. You don't have to manage this alone anymore.